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| Support for dermatitis herpetiformis sufferers - Message boards, case studies, info... Come and join us. | ||
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The Dermatitis Herpetiformis Online Community Blog
| This weblog (blog) is a place for me to post articles of interest for people with DH and coeliac disease and enables me to communicate notices to site visitors. If you'd like to be advised when new posts are added, please either subscribe to the web feed or sign up for email notifications.
Annie Barnes (Site Admin)
The DHOC has moved serversI have today moved the Dermatitis Herpetiformis Online Community to a new web server. The domain hasn't changed so you'll still be able to view it at the same address as before: http://www.dermatitisherpetiformis.org.uk/I've also taken the opportunity to streamline the site a little by removing some of the less popular facilities. The following features are still available...
You'll notice that the web forums have been condensed into two message boards: In case you're concerned, it's not my intention to shut down the DH Online Community - I've simply found that I have less time than I used to, to maintain and oversee the site. Please continue to visit the DHOC and to converse and offer support to others on the message board. Best wishes, Annie (Site Admin)
Celiac Disease Center's Family ScreeningSunday, October 14, 20079:00 am - 5:00 pm Rye High School Rye, NY 10580 Highlights... Family screening for celiac disease Test results Educational sessions Exhibits Gluten-free vendor fair Entertainment (all included in your registration) Registration $25 per person. Registration by October 1 required. Register online at http://www.celiacdiseasecenter.org/ No refunds. Gluten-free lunch is available for purchase the day of the event. Cash only. Family Screening Because celiac disease is hereditary, family members--particularly first and second-degree relatives-of people who have been diagnosed should be tested for the disease. About 10 percent of an affected person's first-degree relatives (parents, siblings, or children) will also have the disease. The longer a person goes undiagnosed and untreated, the greater the chance of developing malnutrition and other complications. Criteria: You must pre-register online at http://www.celiacdiseasecenter.org/ before Monday, October 1. Limited Capacity. 6 + years of age You must be a first or second-degree relative of someone with celiac disease You must be on a regular gluten containing diet for at least 60 days before testing For additional information about celiac disease and the Celiac Disease Center at Columbia University, please visit us online at http://www.celiacdiseasecenter.org/. Celiac Disease Center at Columbia University Harkness Pavilion 180 Fort Washington Avenue Suite 934 New York, NY 10032 Tel (212) 342-4529 Cell (646) 812-1212 Fax (212) 342-0447 Email cb2280@columbia.edu http://www.celiacdiseasecenter.org/
US FDA Proposes to Define the Term "Gluten-Free" for Voluntary Use in Food LabelingFDA Proposes to Define the Term "Gluten-Free" for Voluntary Use in Food LabelingThe Food and Drug Administration (FDA) has published a proposed rule in the Federal Register, Docket No. 2005N-0279, titled "Food-Labeling: Gluten Free Labeling of Foods" (72 FR 2795). Included in the proposed rule is a definition established by the FDA for the term "gluten-free" for voluntary use in the labeling of foods. A definition for the term "gluten-free" would assist those who have celiac disease (also know as celiac spue or gluten-sensitive enteropathy) and their caregivers to more easily identify packaged foods that are safe for persons with celiac disease to eat. Celiac disease occurs in genetically susceptible individuals and causes damage to their small intestine when they consume gluten found in "prohibited grains". Celiac disease has no cure, but avoiding the consumption of gluten can resolve its symptoms, mitigate and possibly reverse damage, and reduce associated health risks. This proposed rule has been prepared in response to the Food Allergen Labeling and Consumer Protection Act of 2004, Title II of Public Law 108-282, enacted on August 2, 2004, which directs the Secretary of the Department of Health and Human Services to propose, and later make final, a rule that defines and permits the use of the food labeling term "gluten-free". FDA is proposing to define the food labeling term "gluten-free" to mean that a food bearing this claim does not contain any of the following:
A food that bears the claim "gluten-free" or a similar claim (e.g. "free of gluten", "without gluten", "no gluten") in its labeling and fails to meet the conditions specified in the proposed definition of "gluten-free" would be deemed misbranded. Currently, there is no Federal regulation that defines the term "gluten-free" used in the labeling of foods. Based upon comments FDA received during its public meeting on "gluten-free" food labeling held in August 2005 and other information available to the Agency, there is no universal understanding among U.S. food manufacturers or consumers about the meaning of a food labeled as "gluten-free". FDA believes that establishing a definition for the term "gluten-free" and uniform conditions for its use in the labeling of foods will ensure that persons with celiac disease are not misled and are provided with truthful and accurate information. The proposed rule has a 90-day public comment period. A document titled "Questions and Answers on the Gluten-Free Labeling Proposed Rule" has been prepared by FDA and is available online.
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